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ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases

Rare Eye Diseases display major heterogeneity and represent the leading cause of visual impairment/visual loss in children & young adults. Significant barriers remain for early diagnosis, patient management & research. EU experts decided to join forces in a European Reference Network.

 ERN-EYE, 29 members in 13 countries across European Union

 to guarantee the best coverage of more than 900 Rare Eye Diseases

 

- Coordinator: Pr Hélène Dollfus, Hôpitaux Universitaires de Strasbourg, France

 

- 29 Healthcare Providers are full members of ERN-EYE

 

- All members were approved by their national authority and positevely assessed by a independant body

 

ERns Goals: 1.Improve patient trajectory in the EU ⇒ Virtual clinic 2.Reduce inequalities of patient care in the EU 3.	Reduce the time to diagnosis and care 4.Bring diagnosis to the undiagnosed 5.Ensure molecular diagnosis to the largest number of patient

 European reference networks

For rare, low-prevalence and complex diseases

 

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialised treatment and concentrated knowledge and resources. Health systems in the European Union aim to provide high-quality, cost-effective care. This is particularly difficult with rare or low-prevalence complex diseases or conditions. Between 5.000 and 8.000 rare diseases affect the daily lives of around 30 million people in the EU.

 

Carte Europe HCPs

Check out more information about ERNs: ERNs press release / ERNS brochure / ERNs flyer / ERNs memo.

 

 

 

About the ERN initiative

 


RECENT NEWS

EUROPE - Survey on the impact of rare diseases on daily life

Through its Rare Barometer Voices survey, EURORDIS-Rare Diseases Europe conducted the first European survey on the impact of rare diseases on everyday life. 

Read more about: EUROPE - Survey on the impact of rare diseases on daily life
New network of Parliamentary Advocates for Rare Diseases

EURORDIS launches in October the Parliamentary Advocates for Rare Diseases, a network of European and national members of parliament advocating to improve the lives of people living with a rare...

Read more about: New network of Parliamentary Advocates for Rare Diseases

 

<  Older news

 

Disclaimer

ERN-EYE is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

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 agenda

Conference of ophtalmology

The 2nd Conference Ophthalmology Journal is organized by Via Medica and will be held during Feb 09 - 10, 2018 at LublinLubelskie, Poland.

4th European Days of Albinism (4EDA)

 4EDA will take place in Norway, March 7th-10th, 2018.

European Course on Genetics in Hereditary Retinal Disease

The European Course on Genetics in Hereditary Retinal Disease will take place on December 1-2, 2017 with Scientific Coordination of Prof. Carel Hoyng and Prof. Camiel J. F. Boon, member of ERN-EYE.

International Congress On Research Of Rare And Orphan Diseases

Re(act) Congress, 7th-10th March in Bologna

RD-ACTION & DG Sante Workshop

RD-ACTION and DG Sante organize a workshop on 6th and 7th December 2017 at Istituto Superiore di Sanita in Italy. 

ARVO 2018 Annual Meeting

The ARVO 2018 Annual Meeting in Honolulu, Hawaii, will gather 11,000 international basic and clinical researchers and share the latest breakthroughs in vision research.

 

 

 

This ERN is supported by: