European reference networks

For rare, low-prevalence and complex diseases

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialised treatment and concentrated knowledge and resources. Health systems in the European Union aim to provide high-quality, cost-effective care. This is particularly difficult with rare or low-prevalence complex diseases or conditions. Between 5.000 and 8.000 rare diseases affect the daily lives of around 30 million people in the EU. 

Check out more information about ERNs: ERNs press release / ERNS brochure / ERNs flyer / ERNs memo.

About the ERN initiative

 ERN-EYE, 29 members in 13 countries across European Union

 to guarantee the best coverage of more than 900 Rare Eye Diseases

• Coordinator: Pr Hélène Dollfus, Hôpitaux Universitaires de Strasbourg, France
• 29 Healthcare Providers are full members of ERN-EYE
• All members were approved by their national authority and positevely assessed by a independant body

ERN-EYE GOALS

1. Improve patient trajectory in the EU ⇒ Virtual clinic
2. Reduce inequalities of patient care in the EU
3. Reduce the time to diagnosis and care
4. Bring diagnosis to the undiagnosed
5. Ensure molecular diagnosis to the largest number of patients in the EU
6. Facilitate involvement of patients in clinical trials
7. Give access to innovation
8. Provide tools for education and communication

About ERN-EYE mission