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ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases

Rare Eye Diseases display major heterogeneity and represent the leading cause of visual impairment/visual loss in children & young adults. Significant barriers remain for early diagnosis, patient management & research. EU experts decided to join forces in a European Reference Network.

I am a patient :

patient

What ERN can do for me?

What is ERN-EYE?

Where can I find an expert center?

Who are the patient representatives?

Where can I find ongoing clinical trials?

Patient testimonies

I am a professional :

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What is ERN-EYE?

Where can I find an expert center?

What is the virtual clinic (CPMS)?

What ERN can do for me?

Where can I find ongoing clinical trials?

Connection to the ERN-EYE member area

What is ERN-EYE? Find out in video!

Map of the ERN-EYE members across Europe

Carte avec affiliated (Malte)

Check out more information about ERNs: ERNs press release / ERNS brochure / ERNs flyer / ERNs memo.

About the ERN initiative

RECENT NEWS

Press release – ERN-EYE Virtual Meeting 14th-15th October 2020

ERN-EYE organised its meeting in virtual from 14th to 15th October 2020. It brought together close to 150 participants.

Blind and visually impaired people: protective measures at your fingertips!

This video provides useful information about protective measures that require more vigilance so that they are carried out properly by both visually impaired people and their family or caregiver.

EURORDIS survey on the effects of the coronavirus outbreak on the rare disease community

An EURORDIS multi-country survey has pointed out the effects of the current coronavirus pandemic on people with rare diseases.

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Disclaimer

ERN-EYE is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.