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ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases
Rare Eye Diseases display major heterogeneity and represent the leading cause of visual impairment/visual loss in children & young adults. Significant barriers remain for early diagnosis, patient management & research. EU experts decided to join forces in a European Reference Network.
All 24 ERNs united to help Ukrainian people with rare diseases
All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.
I am a patient :
Where can I find an expert center?
Who are the patient representatives?
I am a professional :
Where can I find an expert center?
What is the virtual clinic (CPMS)?
Map of the ERN-EYE members across Europe
Recent news
An open letter signed by all ERNs calling for a renewed and continuous support to the ERNs was published.
ERN-EYE network has created a video to make medical staff aware of how to welcome people with Usher syndrome.
The first patients have been enrolled in REDgistry, after giving their informed consent, at the ERN-EYE coordinator organisation in Strasbourg by Pr Hélène Dollfus.
Disclaimer
ERN-EYE is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.
This ERN is supported by:
