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ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases

Rare Eye Diseases display major heterogeneity and represent the leading cause of visual impairment/visual loss in children & young adults. Significant barriers remain for early diagnosis, patient management & research. EU experts decided to join forces in a European Reference Network.

All 24 ERNs united to help Ukrainian people with rare diseases

All 24 European Reference Networks (ERNs) launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.

Share it with #ERNcare4Ua

Visit the dedicated website www.erncare4ua.eu

Map of the ERN-EYE members across Europe 

Full members: Belgium, Czech Republic, Denmark, Estonia, Finland, France, Germany, Ireland, Italy, Latvia, Lithuania, Netherlands, Poland, Portugal, Romania, Slovenia, Spain, Sweden. Affiliated partners: Austria, Croatia, Luxembourg, Hungary,Malta, Slovak

 


Recent news

The ERN-EYE Transversal working Group 5 created a survey to get an overview of existing low vision services in Europe.

ERICA is launching a survey to collect information on the status quo of ERNs and Clinical Research.

The aim is to gather inputs of all types of stakeholders to make sure that the actions of the partnership will fit the needs and expectations of rare diseases community.

 

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Disclaimer

ERN-EYE is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit http://ec.europa.eu/health/ern The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

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