How to contact the center
Full member
HCP Center
LUMC / AMC are modern university medical centers for research, education and patient care with a high quality profile and a strong scientific orientation. Its unique research practice, ranging from pure fundamental medical research to applied clinical research, places LUMC / AMC among the world top. This enables LUMC / AMC to offer patient care and education that is in line with the latest international insights and standards – and helps it to improve medicine and healthcare both internally and externally.
Picture : Steven Lek
LUMC / AMC act as knowledge centers for topics in the field of public health with an impact on society, it has a directive function in the region, and acts as centers for continuing education and further training for medical professionals.
LUMC / AMC are centers of expertise for rare eye diseases, with active clinical and basic research on this topic. The AMC ophthalmogenetic database is among the largest in the world.
Picture : Steven Lek
LUMC / AMC act as knowledge centers for topics in the field of public health with an impact on society, it has a directive function in the region, and acts as centers for continuing education and further training for medical professionals.
LUMC / AMC are centers of expertise for rare eye diseases, with active clinical and basic research on this topic. The AMC ophthalmogenetic database is among the largest in the world.
Contact
Leiden University Medical Center/Academic Medical Center Amsterdam, Netherlands
Albinusdreef 2
2333 ZA Leiden
Netherlands
Team
Dr Camiel BOON
Representative
Netherlands
Anterior Segment Rare Eye Diseases (WG4), Genetic Diagnostics (TWG6), National Integration (TWG9), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
Clinical trials
NCT05537220 - Active, Not recruiting
NAC Attack, A Phase III, Multicenter, Randomized, Parallel, Double Masked, Placebo-Controlled Study Evaluating the Efficacy and Safety of Oral N-Acetylcysteine in Patients With Retinitis Pigmentosa
Interventional
NCT04671433 - Active, Not recruiting
Phase 3 Randomized, Controlled Study of AAV5-hRKp.RPGR for the Treatment of X-linked Retinitis Pigmentosa Associated With Variants in the RPGR Gene
Interventional
NCT04794101 - Active, Not recruiting
Phase 3 Follow-up Study of AAV5-hRKp.RPGR for the Treatment of X-linked Retinitis Pigmentosa Associated With Variants in the RPGR Gene
Interventional
NCT03079141 - Unknown
Half-dose photodynamic therapy versus eplerenone treatment in chronic centralserous chorioretinopathy.
Interventional
NCT04926129 - Completed
Natural history of the progression of X-linked retinitis pigmentosa.
Observational