INFOS !
  • MONITORING: The 2025 data collection process, based on 2024 data, will begin on January 1, 2025, and conclude on March 31, 2025. ERN-EYE members will have to submit their indicators by February 28, 2025. More +

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ERICA – PROMs Repository

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PROMs Repository – Content

The ERICA Patient Reported Outcome Measures (PROMs) Repository is the first attempt to identify and centralize Clinical Assessment Outcomes questionnaires of relevance for rare diseases and constitutes a milestone in the Europe-wide standardization of Patient-Centered Outcome Measures (PCOMs) and PROMs for rare diseases. It has been made possible through the joint collaboration between OrphanetMapi Research Trust/ICON and ERN EuroBloodNet (VHIR, APHP), and the active contribution of ERNs and ePAGs.

Access their website here for more information.

Contribution

The central repository is a dynamic and evolutive service and should be regarded as a centralized and standardized access gate to more in depth information contained in PROQOLID™.

Access their website here for more information or in case you would like to contribute to this repository.