Rare Diseases
Launch of IHI RealiseD Project
The Innovative Health Initiative (IHI) RealiseD project (compRehensive mEthodological and operational Approach to cLinical trIalS in ultra rarE Diseases) has been officially launched on 9th January.
Latest News
ERN-EYE
Season’s greetings!
Season's greetings from the ERN-EYE management team!
ERN-EYE
ERICA ERN Research Conference
The ERICA ERN Research Conference took place from December 11th to December 13th, 2024 in Udine, Italy. Several ERN-EYE members have attended.
ERN-EYE, Unclassified
Short Exchange Programme – Feedbacks
Read two feebacks of participants! The ERN-EYE short exchange programme is meant to meet goals and strengthen capacity on the network level.
ERNs
European Conference “For an EU commitment to tackling rare diseases”
A conference organised by the European Economic and Social Committee (EESC) called "For an EU commitment to tackling rare diseases" took place on 29th November in Budapest.
ERN-EYE, Research
Funding opportunities
Find on this page all funding opportunities of the next months.
ERN-EYE, Unclassified
Orphanet Journal – ERN-EYE Serious game
The abstract presented by ERN-EYE at the European Conference for Rare Diseases (ECRD) earlier this year has been published in the Orphanet Journal of Rare Diseases.
ERN-EYE
REPLAY – ERN-EYE webinar on Usher Syndrome
An ERN-EYE webinar took place on 29th November on Usher Syndrome.
ERN-EYE, Events
Press release – ERN-EYE Scientific Workshop
The 7th ERN-EYE Scientific Workshop about "Rare Eye Diseases: scientific breaking news & AI" took place on 21 and 22 November in Madrid and gathered more than 80 ERN-EYE members and experts.
ERN-EYE
ERN-EYE is recruiting a Project Manager
The job involves overseeing the administrative and financial management of ERN-EYE projects, collaborating with partners across the EU, and driving key research and clinical efforts.
Research
Innovative Health Initiative – Next call
For the next IHI call, a call for creativity is launched. Identify untapped opportunities to turn them into proposals for IHI projects.
Rare Diseases
European Rare Diseases Research Alliance
The European Rare Diseases Research Alliance (ERDERA) kicks off this September 2024, with the aim of improving the lives of 30 million rare disease patient in Europe and beyond.
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