Project management team
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/helene_dollfus_2-150x150.jpg)
Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/dorothee_leroux-150x150.jpg)
Dr Dorothée Leroux
Project Manager of ERN-EYE
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/isabella_carre1-150x150.jpg)
Dr Isabella Vacchi
Project Manager of ERN-EYE
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/amelie_gavard-150x150.jpg)
Dr Amélie Gavard
Medical Writer
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/bernard_coupez_2-150x150.jpg)
Bernard Coupez
Administrative and Financial Project Manager
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2024/05/Nicole-150x150.jpg)
Nicole Beck
SeeMyLife Clinical Research Associate
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2024/05/LouiseERN-150x150.jpg)
Louise Didier
Administrative assistant
HUS, FRANCE
Communication team
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/caroline_iberg1-150x150.jpg)
Caroline Wernert-Iberg
Communication officer of ERN-EYE
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2024/01/FredERN_EYE-e1709029412358-150x150.jpg)
Frédéric Kucia
Graphic designer
HUS, FRANCE
CPMS helpdesk
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/image-5-150x150.png)
Francesco Rotolo
IT-Specialist
Help ERN-EYE members for technical problems or questions about the CPMS
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/monika_2-150x150.jpg)
Dr Monika Grudzinska Pechhacker
ERN-EYE MD fellow
Help ERN-EYE members for medical questions about the CPMS
HUS, FRANCE
Chairs of WG1: Retinal Rare Eye Diseases
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/bart_leroy.jpg)
Pr Bart Leroy
Ghent University Hospital, Belgium
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/portrait_michael_larsen.jpg)
Pr Michael Larsen
Rigshospitalet Glostrup- DENMARK
Chairs of WG2: Neuro-Ophthalmology Rare Diseases
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/steffen_hammann-150x122.png)
Dr Steffen Hamann
Copenhagen, DK
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/catherine_vignal-150x150.jpg)
Dr Catherine Vignal-Clermont
Fondation Adolphe de Rothschild, Paris, France
Chairs of WG3: Pediatric Ophthalmology Rare Diseases
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/telechargement_1-150x150.jpeg)
Pr Dominique Brémond-Gignac
Hôpital Necker-Paris, France
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/susana_noval_2022-150x150.jpg)
PhD Susana Noval
Hospital Universitario La Paz
Chairs of WG4: Anterior Segment Rare Eye Diseases
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/Daniel_Bohringer2-150x150.jpg)
Prof. Daniel Böhringer
University Medical Center, Freiburg - GERMANY
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/portrait_petra_liskova.jpg)
Dr Petra Liskova
Center of Clinical Ophthalmic Genetics, Department of Ophthalmology, General University Hospital in Prague, Czech Republic
Chairs of TWG5: Low Vision, Daily Life and Patients Groups
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/Suppiej_Agnese2-150x150.jpg)
Pr Agnese Suppiej
Center for Retinitis Pigmentosa of the Veneto Region - Camposampiero Hospital
(Azienda ULSS 6 Euganea, Padova, Italy)
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/david_keegan_2-150x150.png)
Dr David Keegan
ERN-EYE Ireland Consortium (EEIC)
Chairs of TWG6: Genetic Diagnostics
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/Susanne_Kohl2-150x150.jpg)
Dr Susanne Kohl
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/elfride_de_baere_2-150x150.jpg)
Pr Elfride De Baere
Ghent University Hospital, Belgium
Chairs of TWG7: Registries & Epidemiology
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/christina_fasser1-150x150.jpg)
Christina Fasser
Supporting Partner
Chairs of TWG8: Research
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/portrait_c_boon.jpg)
Dr Camiel Boon
LUMC/AMC - THE NETHERLANDS
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/katarina_stingl-150x150.jpg)
Dr Katarina Stingl
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany
Chairs of TWG9: National Integration
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/helene_dollfus_2-150x150.jpg)
Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE
Chairs of TWG10: CPMS & Digital Medecine
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/helene_dollfus_2-150x150.jpg)
Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE
![](https://www.ern-eye.eu/wp-content/uploads/sites/2/2023/11/dorothee_leroux-150x150.jpg)
Dr Dorothée Leroux
Project Manager of ERN-EYE
HUS, FRANCE