ERN-EYE
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ERN-EYE, Events, Rare Diseases
ERN-EYE at Euretina 2025
ERN-EYE participated in EURETINA 2025 in Paris, highlighting collaborations with SENSGENE and contributing to sessions on inherited retinal diseases, diagnostic challenges and innovative therapies.
ERN-EYE
New ERN-EYE Project Manager
Mélusine Nehlig joined the ERN-EYE team on 4 August 2025 in capacity of project manager together with Isabella Vacchi. She replaces Guillaume Parent in this role.
ERN-EYE
Replay ERN-EYE webinar on corneal dystrophies
An ERN-EYE webinar took place on 20 June 2025 on corneal dystrophies. Watch now the replay!
ERN-EYE
Replay ERN-EYE webinar on Retinoblastoma
An ERN-EYE webinar took place on 17 June 2025 on "Retinoblastoma". Watch now the replay!
ERN-EYE
Replay – ERN-EYE webinar on CVI
An ERN-EYE webinar took place on 20 May 2025 on "Cerebral Visual Impairment (CVI)". The replay is now available.
Rare Diseases
MOOC – Diagnosing rare diseases
Foundation For Rare Diseases, ERN Ithaca, ERN Genturis and EURORDIS are relaunching the MOOC ‘Diagnosing rare diseases: from the clinic to research and back’.
Rare Diseases
EU rare disease conference in Warsaw
A two-day conference under the Polish EU Council Presidency was held at the Medical University of Warsaw on 10 and 11 April 2025. Pr Hélène Dollfus, ERN-EYE coordinator, attended.
ERN-EYE
ERN-EYE General Annual Meeting 2025
ERN-EYE General Annual Meeting 2025, held on 10-11 April 2025, in Kaunas, Lithuania, successfully brought together around 60 experts, members and patient representatives to discuss ERN-EYE activities.
Rare Diseases
Results of the Rare Barometer survey
The full report on the European results of the latest Rare Barometer survey launched by EURORDIS are now available.
Events
8th International Competition
The Art and Low Vision association is organising a drawing and painting competition. The competition is open to all, children, teenagers and adults, beginners or experienced artists, with low vision.
Rare Diseases
Consultation on Rare Diseases
On 28 February 2025, the Committee on Public Health (SANT) of the European Parliament launched a public consultation on rare diseases. The online survey will be available until 31 March 2025.
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