ERN-EYE Educational Videos
ERN-EYE creates educational videos together with the healthcare experts and the patient associations of the network.
Whether you are a healthcare professional, researcher, trainee, patient advocate, or member of the wider rare disease community, these educational materials provide valuable insights and practical knowledge to enhance understanding and improve care for people living with rare eye diseases.
You find below all the educational videos created by ERN-EYE.
This video was developed by the French network SENSGENE and translated in close collaboration with ERN-EYE expert clinicians and patient representatives.
The ERN-EYE team collaborated with a patient representative, ERN-EYE’s current ePAG chair, and with healthcare professionals from the network to gather all relevant information on Usher syndrome.
This project was produced according to the European rules (Directive 2006/126/CE) with the help of a patient representative as well as experts of the network.
This video was developed in close collaboration with ERN-EYE expert clinicians and patient representatives. Their combined expertise ensured that the content reflects real-life experiences, practical needs, and respectful interaction that truly support people with visual impairment.