ERNs
Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership
May 2023
The Strategic Research and Innovation Agenda of the RD Partnership is now open for public consultation.
Latest News
ERNs, Events
EURORDIS Partnership Webinars: Rare Disease National Networks & ERN National Coordination Hubs
May 2023
ERN-EYE
Monitoring: Thank you to all ERN-EYE Full Members and Affiliated Partners!
May 2023
A total of about 20 700 new patients out of about 65 500 total patients were referred to ERN-EYE HCPs in 2022.
E-learning
Course “Development of Clinical Practice Guidelines”
May 2023
ERN-EYE, Events
7th General Annual meeting of ERN-EYE
March 2023
Documentation
New video from Rare Diseases International: what is a rare disease?
March 2023
Documentation
EJP-RD‘s new video explaining the Rare Diseases National Mirror Groups
February 2023
Events
Black Pearl Awards 2023
February 2023
Events
Neuro-ophthalmology working group meeting
February 2023
Publications
New paper from ERN-EYE members
January 2023
Publications
New paper from ERN-EYE members: “Outcome of Cataract Surgery in Patients With Retinitis Pigmentosa”
January 2023
ERN-EYE
Season’s greetings from the ERN-EYE management team!
December 2022