Rare Diseases
Consultation on Rare Diseases
On 28 February 2025, the Committee on Public Health (SANT) of the European Parliament launched a public consultation on rare diseases. The online survey will be available until 31 March 2025.
Latest News
Research
New clinical trial map launched in the EU
The map is designed to provide patients and healthcare professionals with easy access to comprehensive, real-time information about clinical trials conducted in their area, increasing access to clinic
ERNs
ERNs success stories
The European Commission has recently released a special ERN booklet to raise awareness about European Reference Networks.
ERN-EYE
New video: Vision and Driving
Update your knowledge in less than 3 minutes with the ERN-EYE video, produced following the European Directive 2006/126/CE.
ERN-EYE
Short-Exchange Programme – Feedbacks
Read two feebacks of participants! The ERN-EYE short exchange programme is meant to meet goals and strengthen capacity on the network level.
ERN-EYE
New ERN-EYE Project Manager
Guillaume Parent joined the ERN-EYE team on 20 January 2025 in capacity of projet manager together with Isabella Vacchi.
Research
The DeCODe project call for support
This opportunity is open to a wide range of developers, including academics, individual researchers, startups, industry stakeholders, organisations from diverse settings, and patient-led initiatives.
Rare Diseases
Launch of IHI RealiseD Project
The Innovative Health Initiative (IHI) RealiseD project (compRehensive mEthodological and operational Approach to cLinical trIalS in ultra rarE Diseases) has been officially launched on 9th January.
ERN-EYE
Season’s greetings!
Season's greetings from the ERN-EYE management team!
ERN-EYE
ERICA ERN Research Conference
The ERICA ERN Research Conference took place from December 11th to December 13th, 2024 in Udine, Italy. Several ERN-EYE members have attended.
ERNs
European Conference “For an EU commitment to tackling rare diseases”
A conference organised by the European Economic and Social Committee (EESC) called "For an EU commitment to tackling rare diseases" took place on 29th November in Budapest.
ERN-EYE, Research
Funding opportunities
Find on this page all funding opportunities of the next months.