ERN-EYE
REPLAY – ERN-EYE webinar on Usher Syndrome
An ERN-EYE webinar took place on 29th November on Usher Syndrome.
Latest News
ERN-EYE, Events
Press release – ERN-EYE Scientific Workshop
The 7th ERN-EYE Scientific Workshop about "Rare Eye Diseases: scientific breaking news & AI" took place on 21 and 22 November in Madrid and gathered more than 80 ERN-EYE members and experts.
ERN-EYE
ERN-EYE is recruiting a Project Manager
The job involves overseeing the administrative and financial management of ERN-EYE projects, collaborating with partners across the EU, and driving key research and clinical efforts.
Research
Innovative Health Initiative – Next call
For the next IHI call, a call for creativity is launched. Identify untapped opportunities to turn them into proposals for IHI projects.
Rare Diseases
European Rare Diseases Research Alliance
The European Rare Diseases Research Alliance (ERDERA) kicks off this September 2024, with the aim of improving the lives of 30 million rare disease patient in Europe and beyond.
ERN-EYE
New ERN-EYE article
A new article of ERN-EYE has been published in Drug Discovery Today : "Therapies for Inherited Retinal Dystrophies: What is Enough?".
ERN-EYE
Clinical Consensus Statement on Bardet-Biedl
This significant achievement is the result of a collaborative effort between four European Reference Networks (ERNs): ERN-EYE, Endo-ERN, ERN Ithaca and ERKNet.
Rare Diseases
EURORDIS – Rare Barometer
The Rare Barometer survey focuses on the impact of living with a rare disease on everyday life.
Rare Diseases
EURORDIS Black Pearl Awards
ERN-EYE
Exciting news in our Summer Newsletter!
Read the latest news in our Summer Newsletter! ERN-EYE boothes at 3 congresses in June, replay of the LHON webinar, 1st prize for our poster and successful completion of the 1st e learning course!
ERN-EYE, ERNs
ERN-EYE at ESHG, EUNOS and RIWC 2024
ERN-EYE took part in three big congresses in June: ESHG, EUNOS and RIWC 2024 with boothes to increase awareness about the network, work, goals, and mission.
E-learning
Success of the ERN-EYE eLearning Module on Inherited Retinal Diseases
The ERN-EYE e-learning course on Inherited Retinal Diseases, launched for the first time in March was successfully completed at the end of June.