MONITORING: The 2025 data collection process, based on 2024 data, will begin on January 1, 2025, and conclude on March 31, 2025. ERN-EYE members will have to submit their indicators by February 28, 2025. More +
The European Rare Diseases Research Alliance (ERDERA) kicks off this September 2024, with the aim of improving the lives of 30 million rare disease patient in Europe and beyond.
This significant achievement is the result of a collaborative effort between four European Reference Networks (ERNs): ERN-EYE, Endo-ERN, ERN Ithaca and ERKNet.
Read the latest news in our Summer Newsletter! ERN-EYE boothes at 3 congresses in June, replay of the LHON webinar, 1st prize for our poster and successful completion of the 1st e learning course!
ERN-EYE took part in three big congresses in June: ESHG, EUNOS and RIWC 2024 with boothes to increase awareness about the network, work, goals, and mission.
Watch now the replay of the webinar on Leber's Hereditary Optic Neuropathy with ERN-EYE and external experts, including Pr Marko Hawlina and Pr Martina Jarc Vidmar.