This opportunity is open to a wide range of developers, including academics, individual researchers, startups, industry stakeholders, organisations from diverse settings, and patient-led initiatives.
The Innovative Health Initiative (IHI) RealiseD project (compRehensive mEthodological and operational Approach to cLinical trIalS in ultra rarE Diseases) has been officially launched on 9th January.
European Conference “For an EU commitment to tackling rare diseases”
A conference organised by the European Economic and Social Committee (EESC) called "For an EU commitment to tackling rare diseases" took place on 29th November in Budapest.
The abstract presented by ERN-EYE at the European Conference for Rare Diseases (ECRD) earlier this year has been published in the Orphanet Journal of Rare Diseases.
The 7th ERN-EYE Scientific Workshop about "Rare Eye Diseases: scientific breaking news & AI" took place on 21 and 22 November in Madrid and gathered more than 80 ERN-EYE members and experts.
The job involves overseeing the administrative and financial management of ERN-EYE projects, collaborating with partners across the EU, and driving key research and clinical efforts.