Clinical Trial
Disease
Disease type
Hereditary retinal disease
Retinitis Pigmentosa
Patient type
Adult
Children
Inclusion / Exclusion
Funding
Private
Members involved
Others investigators
Dr Philipp Herrmann
Substitute
Germany
CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Pr Isabelle Audo
Representative
France
Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), National Integration (TWG9), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Pr Michael LARSEN
Representative
Denmark
Neuro-Ophthalmology Rare Diseases (WG2), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
Pr Dominique BREMOND-GIGNAC
Representative
France
Anterior Segment Rare Eye Diseases (WG4), CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), National Integration (TWG9), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
ERN EYE member investigating site
HCP : Principal investigators
ASST Santi Paolo e Carlo, Milan, Italy
Adress
Via Antonio di Rudinì, n. 8
20142 Milano MI
Italy
University of Bonn, Germany
Adress
Ernst-Abbe-Strasse 2
53127 Bonn
Germany
RÉFÉRET National Hospital of Ophthalmology of Quinze-Vingts, Paris, France
Adress
28 Rue de Charenton
75012 Paris
France
Rigshospitalet, Copenhagen, Denmark
Adress
Inge Lehmanns Vej 7 Entrance 2, 6. floor Section 2061
2100 Copenhagen
Denmark
OPHTARA – AP-HP, Hôpital Necker-Enfants Malades, Paris, France
Adress
Service d'ophtalmologieBât. Lecourbe - RC149 rue de Sèvres
75 015 Paris
France
Fondazione Policlinico Universitario A. Gemelli – Roma, Italy
Adress
Via della Pineta Sacchetti, 217
168 Roma RM
Italy