Clinical Trial
Disease
Disease type
Hereditary retinal disease
Retinitis Pigmentosa
Patient type
Adult
Children
Funding
public
Members involved
Others investigators
Dr Katarina Stingl
Representative
Germany
Low Vision Daily Life and Patients Groups (TWG5), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
Dr Susanne KOHL
Substitute
Germany
Genetic Diagnostics (TWG6), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
Dr Philipp Herrmann
Substitute
Germany
CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Pr Daniel Böhringer
Representative
Germany
Anterior Segment Rare Eye Diseases (WG4)
Working Group Leader
Pr Paul Friedemann
Representative
Germany
Neuro-Ophthalmology Rare Diseases (WG2), Registries & Epidemiology (TWG7), Research (TWG8)
ERN EYE member investigating site
HCP : Principal investigators
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany
Adress
Department für Augenheilkunde Tübingen Forschungsinstitut für Augenheilkunde Elfriede-Aulhorn-Str. 7
72076 Tübingen
Germany
HCP : Others investigators
University of Bonn, Germany
Adress
Ernst-Abbe-Strasse 2
53127 Bonn
Germany
Klinikum der Universität München, Germany
Adress
Mathildenstraße 8
80336 Munich
Germany
Eye Center, University Hospital Freiburg, Germany
Adress
Killianstraße 5
79106 Freiburg im Breisgau
Germany
Charité – Universitätsmedizin Berlin, Germany
Adress
Charitépl. 1
10117 Berlin
Germany