ERN-EYE
Replay of the Webinar on LHON
Watch now the replay of the webinar on Leber's Hereditary Optic Neuropathy with ERN-EYE and external experts, including Pr Marko Hawlina and Pr Martina Jarc Vidmar.
Latest News
CPMS, ERN-EYE
News from the CPMS 2.0
The MVP (minimum viable product) version was released the 31 May 2024.
ERN-EYE
1st prize for ERN-EYE’s poster
ERN-EYE won the 1st prize for its poster on the ADhoc Serious Game at ECRD 2024.
ERN-EYE
Press release – General Annual Meeting
ERN-EYE
NEW EURETINA Podcast – Gut Bacteria and Eye Disease
Listen to the new European Society of Retina Specialists (EURETINA) Podcast with Pr Bart Leroy, ERN-EYE member, and Pr Mark Pennesi on "Gut bacteria and eye diseases?"
ERN-EYE, Publications
New paper from ERN-EYE members
This article reports ocular phenotype and genetic findings in two Czech families with Sorsby fundus dystrophy, reviewing TIMP3 pathogenic variants.
ERNs
JARDIN Joint Action kick-off Meeting
From 6 to 8 March 2024, the JARDIN Joint Action was officially launched during a kick-off Meeting in Brussels. Pr Hélène Dollfus, ERN-EYE coordinator, has attended the meeting.
ERN-EYE
Serious game – Now available!
The aim is to raise awareness among healthcare professionals of all ages and specialties about best practices when announcing a diagnosis of rare diseases.
ERN-EYE
ERN-EYE Exchange Programme 2024
CPMS, ERN-EYE
New CPMS – latest news
ERNs
Statement by Commissioner Kyriakides
Statement on the future of rare diseases in Europe, and in particular European reference networks.
Documentation
EJP RD Funded Project Dashboard
To mark Rare Disease Day, The European Joint Programme on Rare Diseases (EJP RD) is launching the EJP RD Funded Project Dashboard.