ERN-EYE
Serious game – Now available!
The aim is to raise awareness among healthcare professionals of all ages and specialties about best practices when announcing a diagnosis of rare diseases.
Latest News
ERN-EYE
ERN-EYE Exchange Programme 2024
CPMS, ERN-EYE
New CPMS – latest news
ERNs
Statement by Commissioner Kyriakides
Statement on the future of rare diseases in Europe, and in particular European reference networks.
Documentation
EJP RD Funded Project Dashboard
To mark Rare Disease Day, The European Joint Programme on Rare Diseases (EJP RD) is launching the EJP RD Funded Project Dashboard.
Publications
Understanding genetic risk could save sight and predict multiple sclerosis earlier in young people
ERN-EYE
WG1 Ontology follow-up meeting
ERN-EYE experts of the Retina gathered on 1st and 2nd February in Strasbourg.
ERN-EYE
Event on the SeeMyLife Research Project
The meeting provided an opportunity to assess the steps already taken and to discuss the objectives and challenges.
ERN-EYE
Educational videos to inform patients about clinical trials in rare eye diseases
Watch the series of videos created by the expert center RefeRet in Paris!
ERN-EYE
ERN-EYE 6th Scientific Workshop
ERN-EYE, the European Reference Network dedicated to Rare Eye Diseases, successfully concluded its 6th Scientific Workshop.
ERN-EYE
New ERN-EYE website
December 2023
Our new website is live, featuring a modern design and improved navigation on mobile devices.
ERNs
Open letter of the rare diseases community
October 2023
An open letter signed by all ERNs calling for a renewed and continuous support to the ERNs was published.