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The course “Development of Clinical Practice Guidelines” is already available in the EU Academy of the European Commission, accessible to those who have an EU login (https://webgate.ec.europa.eu/). This training has been developed within the framework of the ERN Guideline Programme and it pursues improving the capability of ERNs healthcare professionals, CPGs…
ERN-EYE organised its 7th General Annual Meeting from March 23rd to 24th in Ljubljana, Slovenia. It gathered nearly 100 people from the HCPs of 18 member states of the network, as well as invited speakers. The ERN-EYE Team Hôpitaux Universitaires de Strasbourg, FranceWebsite: www.ern-eye.eu
What is a rare disease? How many people live with a rare disease? Why do Persons Living with a Rare Disease and their families require specific attention? Rare Diseases International (RDI) has released a video illustrating its operational description of rare diseases. It is an internationally agreed definition that explains what rare…
Do you want to learn about the connection between the expertise and knowledge from the Rare Diseases Community of a specific country with the EJP RD countries?
