Clinical Trial
307690
EXPLORE XLRP 2
Retrospective Chart Review Study Combined with Cross-sectional Patient and Caregiver Surveys to Document and Describe the Disease-related Clinical, Individual, Sociodemographic Characteristics of Patients with X-linked Retinitis Pigmentosa (XLRP) and the Impact of XLRP on Patients and Their Caregivers
Disease
Disease type
Hereditary retinal disease
Retinitis Pigmentosa
Funding
Private
Members involved
Others investigators
Pr Martin Spitzer
Representative
Germany
Pediatric Ophthalmology Rare Diseases (WG3), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Dr Johannes Birtel
Substitute
Germany
CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Pediatric Ophthalmology Rare Diseases (WG3), Research (TWG8), Retinal Rare Eye Diseases (WG1)
ERN EYE member investigating site
HCP : Principal investigators
Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany
Adress
Martinistraße 52
20251 Hamburg
Germany