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What is ERN-EYE?
Press release – General Annual Meeting, 25-26 April 2022
News
CPMS RED-VAR Meetings
This year, we are launching a new activity on the CPMS, a review of variant interpretation in Rare Eye Diseases, RED-VAR. It is a multidisciplinary meeting, which involves clinicians, clinical molecular geneticists and researchers to provide recommendations on challenging variants. ERN-EYE organises CPMS RED-VAR meetings four times a year. The first one took…
News
EJP RD – Networking Support Scheme (NSS) Call
The Call for the NSS is open on a continuous basis. The applications will be collected on the following dates: For more information, follow the link.
News
ERN Exchange Programme 2021-2022
Knowledge sharing and stimulating collaboration between health care professionals in European Reference Networks (ERN) is the aim of the ERN Exchange Programme 2021-2022, funded by the European Commission. Based on the same spirit of the programme we launched in 2018-2019, three editions of exchanges will take place in the coming two years. The…
News
All 24 ERNs united to help Ukrainian people with rare diseases
All 24 ERNs launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice. Our HCP centers, particularly those located in the countries currently receiving large numbers of refugees (Poland, Slovakia, Hungary, Romania) are…
Newsletter March 2022
News
Ministerial Conference “Care and Innovation Pathways for an EU Policy on Rare Diseases”
On 28th February 2022, EU Health Ministers and Stella Kyriakides, European Commissioner for Health and Food Safety, mobilised in Paris at the Ministerial Conference “Care and Innovation Pathways for an EU Policy on Rare Diseases”, organised by the French Presidency of the European Union. This conference was an opportunity to present the…
News
Rare Disease Day – Several presentations of ERN-EYE
On the occasion of International Rare Disease Day, Pr Hélène Dollfus, ERN-EYE coordinator, presented the ERN-EYE network on 3 occasions: