Search
2443 results
News
First patients enrolled in REDgistry – July 2023
As of July 2023, the first patients have been enrolled in REDgistry, after giving their informed consent.
News
Introducing Together4RD’s newly published Position Statement on collaboration between ERNs and industry!
The paper considers the diverse factors that have impeded the vital collaboration between European Reference Networks (ERNs) and industry to date and calls for strategic action to foster more partnerships that can drive groundbreaking advancements. A wide range of factors have stalled ERN-Industry collaboration, including the statements of the Board of…
john-doe
News
Black Pearl Awards – It’s nominations time again!
Don’t miss your chance to nominate your star of the rare disease community, or enter yourself, for one of the next EURORDIS Pearl Awards! The 13 award categories recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media, and policy makers in bringing about change to improve the lives of…