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Caroline Wernert-Iberg

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Member info

Caroline Wernert-Iberg

France

Working Group(s): Retinal Rare Eye Diseases (WG1), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Anterior Segment Rare Eye Diseases (WG4), Low Vision Daily Life and Patients Groups (TWG5), Genetic Diagnostics (TWG6), Registries & Epidemiology (TWG7), Research (TWG8), National Integration (TWG9), CPMS & Digital Medecine (TWG10), Epag, ERN-EYE Coordinating committee

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Team

Pr Hélène Dollfus

France

Anterior Segment Rare Eye Diseases (WG4), CPMS & Digital Medecine (TWG10), Epag, ERN-EYE Coordinating committee, Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), National Integration (TWG9), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
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Dr Monika Grudzinska Pechhacker

France

CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Pediatric Ophthalmology Rare Diseases (WG3), Retinal Rare Eye Diseases (WG1)
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Dr Dorothée Leroux

France

Anterior Segment Rare Eye Diseases (WG4), CPMS & Digital Medecine (TWG10), Epag, ERN-EYE Coordinating committee, Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), National Integration (TWG9), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
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Dr Isabella Vacchi

France

Anterior Segment Rare Eye Diseases (WG4), CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), National Integration (TWG9), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
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Dr Amélie Gavard

France

Anterior Segment Rare Eye Diseases (WG4), BBS Guidelines, CPMS & Digital Medecine (TWG10), Epag, ERN-EYE Coordinating committee, Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), National Integration (TWG9), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
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Francesco Rotolo

France

CPMS & Digital Medecine (TWG10)
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HCP Center

The Reference Center for Rare Disorders in Ophthalmic Genetics (CARGO) was created in the National Rare Diseases Plan in November 2004. It welcomes...

contact

CARGO, Hôpitaux Universitaires de Strasbourg, France

Hôpital Civil -Bâtiment du Centre de Recherche en Biomédecine de Strasbourg (CRBS),1 Rue Eugène Boeckel
67000 STRASBOURG
France

Scientific publications

ERN‑EYE GOOD PRACTICES SERIES: Do’s and don’ts on Usher Syndrome

The leaflet is divided in several parts: clinical manifestation, identified genes, progression of the disease through the years and do’s and...

PDF - 832 KB

How to welcome visually impaired people to the hospital? Educational video for healthcare professionals

The video deals with common situations in the delivery of care activities: different types of visual impairment, reception in a hospital center,...

PDF - 582 KB