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Newsletter October 2023
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Open letter of the rare diseases community
An open letter signed by all ERNs calling for a renewed and continuous support to the ERNs was published.
ERICA Webinar: REMEDI4ALL / drug repurposing and clinical trial readiness by Anton Ussi (2 October 2023)
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Webinar for the presentation of ERN-EYE, Retina Bulgaria (19 September 2023)
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Press release – Usher Syndrome Guidance for healthcare providers
Video about Do’s and Don’ts!