Clinical Trial
Disease
Disease type
Paediatric clinical trials
Orphan drug recognition
NA
Patient type
Adult
Children
Inclusion / Exclusion
Funding
other
Members involved
Main investigators
Dr Camiel BOON
Representative
Netherlands
Anterior Segment Rare Eye Diseases (WG4), Genetic Diagnostics (TWG6), National Integration (TWG9), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
Others investigators
Pr Carel HOYNG
Representative
Netherlands
Genetic Diagnostics (TWG6), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
ERN EYE member investigating site
HCP : Principal investigators
Leiden University Medical Center/Academic Medical Center Amsterdam, Netherlands
Adress
Albinusdreef 2
2333 ZA Leiden
Netherlands
HCP : Others investigators
Radboud university medical center, Nijmegen, Netherlands
Adress
Geert Grooteplein Zuid 10
6525 GA Nijmegen
Netherlands