Clinical Trial
Disease
Disease type
Retinitis Pigmentosa
Orphan drug recognition
NA
Patient type
Adult
Children
Funding
other
Members involved
Main investigators
Pr Francesco PARMEGGIANI
Representative
Italy
Low Vision Daily Life and Patients Groups (TWG5), Retinal Rare Eye Diseases (WG1)
Others investigators
Dr Andrea SODI
Italy
Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), Retinal Rare Eye Diseases (WG1)
Pr Francesco Testa
Substitute
Italy
Genetic Diagnostics (TWG6), Registries & Epidemiology (TWG7), Retinal Rare Eye Diseases (WG1)
Pr Francesca Simonelli
Representative
Italy
Genetic Diagnostics (TWG6), National Integration (TWG9), Registries & Epidemiology (TWG7), Retinal Rare Eye Diseases (WG1)
Dr Giacomo Maria Bacci
Representative
Italy
Anterior Segment Rare Eye Diseases (WG4), Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), Pediatric Ophthalmology Rare Diseases (WG3), Retinal Rare Eye Diseases (WG1)
ERN EYE member investigating site
HCP : Principal investigators
Rigshospitalet, Copenhagen, Denmark
Adress
Inge Lehmanns Vej 7 Entrance 2, 6. floor Section 2061
2100 Copenhagen
Denmark
Center for Retinitis Pigmentosa of the Veneto Region – Camposampiero Hospital (Azienda ULSS 6 Euganea), Padova, Italy
Adress
Centro Specializzato per la Retinite Pigmentosa della Regione Veneto U.O.C. di Oculistica (Ospedale di Camposampiero, Area Rossa, 8° Piano)Via Pietro Cosma 1
35012 Camposampiero Padova
Italy
HCP : Others investigators
AOU Careggi – AOU Meyer Consortium, Firenze, Italy
Adress
Largo Brambilla 3
50134 Florence
Italy
Bambino Gesù Children’s Hospital, Roma, Italy
Adress
Piazza Sant'Onofrio 4
165 Roma
Italy
AOU Università degli Studi della Campania Luigi Vanvitelli, Napoli, Italy
Adress
Via Santa Maria di Costantinopoli
104, 80138 Napoli NA
Italy
ASST Santi Paolo e Carlo, Milan, Italy
Adress
Via Antonio di Rudinì, n. 8
20142 Milano MI
Italy
Fondazione Policlinico Universitario A. Gemelli – Roma, Italy
Adress
Via della Pineta Sacchetti, 217
168 Roma RM
Italy