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PROGSTAR-4 STUDY

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Clinical Trial

NCT02410122 Completed
PROGSTAR-4 STUDY

The Natural History of the Progression of Atrophy Secondary to Stargardt Disease Type 4: PROM1-Related Macular Dystrophy (ProgStar-4).

Phase 1
Observational

Disease

Disease type

Stargardt Disease

Orphan drug recognition

No

Inclusion / Exclusion

Opening date

12/12/2014

Closing date

31/03/2018

Inclusion criteria :

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Exclusion criteria :

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Funding

patient organisation

Members involved

Others investigators

Dr Katarina Stingl

Representative

Germany

Low Vision Daily Life and Patients Groups (TWG5), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
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Prof. Dr. med. Karl Ulrich Bartz-Schmidt

Substitute

Germany

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Dr Susanne KOHL

Substitute

Germany

Genetic Diagnostics (TWG6), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
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Dr Philipp Herrmann

Substitute

Germany

CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Research (TWG8), Retinal Rare Eye Diseases (WG1)
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Pr Frank Holz

Representative

Germany

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ERN EYE member investigating site

HCP : Principal investigators

Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany

Adress

Department für Augenheilkunde Tübingen Forschungsinstitut für Augenheilkunde Elfriede-Aulhorn-Str. 7

72076 Tübingen

Germany