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Research Mobility Fellowships funding
The last round for the Research Mobility Fellowships funding opportunity will open on October, 3rd, 2022.
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Special Recognition Award for Pr Hélène Dollfus
Pr Hélène Dollfus, ERN-EYE coordinator, received the Special Recognition Award in appreciation of her tireless comittment to retina and rare disease patients.
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The Lancet Regional Health – Europe: ERNs’ actions to support rare diseases patients in context of the war in Ukraine
Following the actions launched by the ERNs during the Ukrainian crisis, a short paper was published in The Lancet Regional Health - Europe.
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DARE Fest 2022 on Refsum Disease
DARE Fest 2022 was held online from 11 to 19th June 2022. The aim of this week was to raise awareness on Refsum Disease.
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Black Pearl Awards – Nominations
Nominations for the next Eurordis Black Pearl Awards are currently open, until 4th September.
Newsletter August 2022
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ERICA 2nd General Assembly
The ERICA 2nd General Assembly took place in Bologna from 20 to 22 June as a hybrid meeting.
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ESHG Meeting 2022
ERN-EYE was present with a booth at the ESHG 2022 in Vienna, Austria.
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ERICA WP3
ERN-EYE is collaborating with all ERNs for the ERICA project.
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Unlocking the potential for rare disease therapies through wider collaborations between European Reference Networks and industry
Prominent MEPs seeking quicker wins for rare disease patients are backing closer collaboration between ERNs and pharma companies through a novel multistakeholder initiative.