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On the 26th and 27th of September, ERN-EYE hosted a Consensus Statement meeting in Strasbourg under the leadership of Pr Dollfus, coordinator of the Bardet-Biedl syndrome consensus statement. Representatives from all five working groups involved in the development of this consensus statement gathered to discuss and write the consensus statement for…
The European Commission has updated the general flyer on the 24 European Reference Networks (ERN). It is available in all EU languages as well as in Norwegian.
To address the need for new diagnostic criteria, a panel of 101 international experts consisting of neurologists, ophthalmologists, neuro-ophthalmologists, and neuroradiologists convened electronically between April 20, 2018, and March 31, 2021. They used a validated Delphi process-based approach to develop criteria for diagnosis and classification of optic neuritis. Their diagnostic…
The IRDIC State of Play, covering developments in the field of Rare Diseases research from 2019 to 2021, is now available. The IRDiRC‘s annual State of Play report aims to inform stakeholders at large of developments in the field of rare diseases research in order to support decisions of policy makers and research funders. At the same…
