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2091 results
News

The Lancet Regional Health – Europe: ERNs’ actions to support rare diseases patients in context of the war in Ukraine 

Following the actions launched by the ERNs during the Ukrainian crisis, a short paper was published in The Lancet Regional Health - Europe.
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DARE Fest 2022 on Refsum Disease

DARE Fest 2022 was held online from 11 to 19th June 2022. The aim of this week was to raise awareness on Refsum Disease.
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Black Pearl Awards – Nominations

Nominations for the next Eurordis Black Pearl Awards are currently open, until 4th September.
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ERICA 2nd General Assembly

The ERICA 2nd General Assembly took place in Bologna from 20 to 22 June as a hybrid meeting.
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ESHG Meeting 2022

ERN-EYE was present with a booth at the ESHG 2022 in Vienna, Austria.
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ERICA WP3

ERN-EYE is collaborating with all ERNs for the ERICA project.
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Unlocking the potential for rare disease therapies through wider collaborations between European Reference Networks and industry

Prominent MEPs seeking quicker wins for rare disease patients are backing closer collaboration between ERNs and pharma companies through a novel multistakeholder initiative.
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Dr Laura Mauring from the Tartu University Hospital in Estonia

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Results of the satisfaction survey of the Amsterdam Meeting

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