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2085 results
News

Ministerial Conference “Care and Innovation Pathways for an EU Policy on Rare Diseases”

On 28th February 2022, EU Health Ministers and Stella Kyriakides, European Commissioner for Health and Food Safety, mobilised in Paris at the Ministerial Conference “Care and Innovation Pathways for an EU Policy on Rare Diseases”, organised by the French Presidency of the European Union.  This conference was an opportunity to present the…

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Rare Disease Day – Several presentations of ERN-EYE

On the occasion of International Rare Disease Day, Pr Hélène Dollfus, ERN-EYE coordinator, presented the ERN-EYE network on 3 occasions:

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All 24 ERNs united to help Ukrainian people with rare diseases

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ERN-EYE webinar (3 February 2022) – Neurofibromatosis 1 & 2: An Overview

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EJP RD and C-Path to Expand Global Impact and Partnership

The European Joint Programme on Rare Diseases (EJP RD) announced a collaboration with the Critical Path Institute (C-Path) to advance technologies and methodologies that are fit for regulatory purposes to further global rare disease research and drug development. Building on their experience, both organizations will support the creation of an…

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ERN Exchange in General University Hospital in Prague

Cristina del Prado Sánchez, from Hospital San Joan de Déu, tells us about her experience during her week in Prague as part of the Short Exchange Program.
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Newsletter – Welcome to all ERN-EYE new members

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Press release – Scientific Workshop 25-26 November 2021

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ERICA and EJP-RD Webinar – Does Randomization matter in clinical trials? (14 December 2021)

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Report of the Dublin meeting 25th to 26th November 2021

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