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New paper from ERN-EYE members: “Outcome of Cataract Surgery in Patients With Retinitis Pigmentosa”
Preoperative, intraoperative, and postoperative data of patients with RP who were undergoing cataract surgery were collected from several expertise centers across Europe in a retrospective, noncomparative clinical study. In total, 295 eyes of 225 patients were included in this study. The results of the study are the topic of the…
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Season’s greetings from the ERN-EYE management team!
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EJP-RD – Transnational Call 2023
The European Joint Programme on Rare Diseases launches today the Joint Transnational Call 2023, a funding opportunity for research projects on the development of new analytic tools and pathways to accelerate diagnosis and facilitate diagnostic monitoring of rare diseases. This year’s topic is: “Natural History Studies addressing unmet needs in Rare Diseases” The aim…
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Enter the EURORDIS PHOTO AWARD 2023
Photo submissions for the Photo Award 2023 are now open, until 22nd January 2023 (see form below). The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond. The contest…
Report of the Ghent meeting 1st to 2nd December 2022
ERN-EYE webinar (23 November 2022) – Paediatric neuro-ophthalmology pearls
Press release – Scientific Workshop in Ghent, 1-2 December 2022
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Development of the New CPMS – Business Implementation Group first meeting on 25th October
The actual CPMS will be replaced by a new version in the following months. To ensure that this new tool development meets the user’s needs, a Business Implementation Group was created. A large meeting with all ERNs took place on 25th October. The aim of this meeting was to define the…
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ERN-EYE Consensus Statement meeting for Bardet-Biedl Syndrome
On the 26th and 27th of September, ERN-EYE hosted a Consensus Statement meeting in Strasbourg under the leadership of Pr Dollfus, coordinator of the Bardet-Biedl syndrome consensus statement. Representatives from all five working groups involved in the development of this consensus statement gathered to discuss and write the consensus statement for…