Clinical Trial
Disease
Disease type
Hereditary retinal disease
Retinitis Pigmentosa
Usher Syndrome
Patient type
Adult
Children
Inclusion / Exclusion
Funding
private
Members involved
Others investigators
Dr Katarina Stingl
Representative
Germany
Low Vision Daily Life and Patients Groups (TWG5), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
Pr Carel HOYNG
Representative
Netherlands
Genetic Diagnostics (TWG6), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Dr Ingeborgh VAN DEN BORN
Representative
Netherlands
Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
ERN EYE member investigating site
HCP : Principal investigators
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany
Adress
Department für Augenheilkunde Tübingen Forschungsinstitut für Augenheilkunde Elfriede-Aulhorn-Str. 7
72076 Tübingen
Germany
Radboud university medical center, Nijmegen, Netherlands
Adress
Geert Grooteplein Zuid 10
6525 GA Nijmegen
Netherlands
The Rotterdam Eye Hospital, Rotterdam, Netherlands
Adress
Schiedamse Vest 180
3011 BH Rotterdam
Netherlands