Clinical Trial
Disease
Disease type
Other
Paediatric clinical trials
Orphan drug recognition
Yes
Patient type
Adult
Children
Inclusion / Exclusion
Funding
public
Members involved
Main investigators
Pr Matthieu Robert
France
Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Retinal Rare Eye Diseases (WG1)
Others investigators
Pr Dominique BREMOND-GIGNAC
Representative
France
Anterior Segment Rare Eye Diseases (WG4), CPMS & Digital Medecine (TWG10), Genetic Diagnostics (TWG6), Low Vision Daily Life and Patients Groups (TWG5), National Integration (TWG9), Neuro-Ophthalmology Rare Diseases (WG2), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
ERN EYE member investigating site
HCP : Principal investigators
OPHTARA – AP-HP, Hôpital Necker-Enfants Malades, Paris, France
Adress
Service d'ophtalmologieBât. Lecourbe - RC149 rue de Sèvres
75 015 Paris
France