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RARE DISEASES STAKEHOLDERS

ERNs

ERN ReCONNET

European Reference Network for Connective Tissue and Musculoskeletal...

ERNs

ERN RARE LIVER

European Reference Network for Hepatological...

Partners

Together 4 rare Diseases (T4RD)

Together for Rare Diseases (Together4RD) is an agile multi-stakeholder initiative aimed at supporting ERNs to collaborate with stakeholders to...

Partners

ERDERA

ERDERA – the European Rare Diseases Research Alliance – is a European partnership uniting over 170 public and private organisations across 37...

Partners

HPO

The Human Phenotype Ontology (HPO) aims to provide a standardized vocabulary of phenotypic abnormalities encountered in human...

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