RealiseD is set to generate a novel comprehensive methodological and operational approach to design and conduct clinical trials for rare and...

Together for Rare Diseases (Together4RD) is an agile multi-stakeholder initiative aimed at supporting ERNs to collaborate with stakeholders to...

ERDERA – the European Rare Diseases Research Alliance – is a European partnership uniting over 170 public and private organisations across 37...

The Human Phenotype Ontology (HPO) aims to provide a standardized vocabulary of phenotypic abnormalities encountered in human...

Orphanet is the portal for rare diseases and orphan drugs, it’s the european reference for the classification and...

RD action is highly involved to help ERNs to set up the work.

Representative :