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ERN-EYE

Serious game – Now available!

The aim is to raise awareness among healthcare professionals of all ages and specialties about best practices when announcing a diagnosis of rare diseases.
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ERNs

Statement by Commissioner Kyriakides

Statement on the future of rare diseases in Europe, and in particular European reference networks.
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Documentation

EJP RD Funded Project Dashboard

To mark Rare Disease Day, The European Joint Programme on Rare Diseases (EJP RD) is launching the EJP RD Funded Project Dashboard.
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Publications

Understanding genetic risk could save sight and predict multiple sclerosis earlier in young people

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ERN-EYE

WG1 Ontology follow-up meeting

ERN-EYE experts of the Retina gathered on 1st and 2nd February in Strasbourg.
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ERN-EYE

Event on the SeeMyLife Research Project

The meeting provided an opportunity to assess the steps already taken and to discuss the objectives and challenges.
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ERN-EYE

Educational videos to inform patients about clinical trials in rare eye diseases

Watch the series of videos created by the expert center RefeRet in Paris!
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ERN-EYE

ERN-EYE 6th Scientific Workshop

ERN-EYE, the European Reference Network dedicated to Rare Eye Diseases, successfully concluded its 6th Scientific Workshop.
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ERN-EYE

New ERN-EYE website

Our new website is live, featuring a modern design and improved navigation on mobile devices.
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ERNs

Open letter of the rare diseases community

An open letter signed by all ERNs calling for a renewed and continuous support to the ERNs was published.
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Documentation

Press release – Usher Syndrome Guidance for healthcare providers

Video about Do’s and Don’ts!
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ERN-EYE, ERNs

First patients enrolled in REDgistry – July 2023

As of July 2023, the first patients have been enrolled in REDgistry, after giving their informed consent.
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