ERNs
Open letter of the rare diseases community
October 2023
An open letter signed by all ERNs calling for a renewed and continuous support to the ERNs was published.
ERN-EYE, ERNs
First patients enrolled in REDgistry – July 2023
September 2023
As of July 2023, the first patients have been enrolled in REDgistry, after giving their informed consent.
ERNs
Introducing Together4RD’s newly published Position Statement on collaboration between ERNs and industry!
September 2023
ERNs, Events
Black Pearl Awards – It’s nominations time again!
September 2023
ERNs
ERICA Survey on ERNs and Clinical Research
May 2023
ERNs
Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership
May 2023
The Strategic Research and Innovation Agenda of the RD Partnership is now open for public consultation.
ERNs, Events
EURORDIS Partnership Webinars: Rare Disease National Networks & ERN National Coordination Hubs
May 2023
ERN-EYE, ERNs
Development of the New CPMS – Business Implementation Group first meeting on 25th October
October 2022
ERN-EYE, ERNs, Publications
ERN-EYE Consensus Statement meeting for Bardet-Biedl Syndrome
October 2022
ERNs
Research Mobility Fellowships funding
August 2022
The last round for the Research Mobility Fellowships funding opportunity will open on October, 3rd, 2022.