Clinical Trial
Disease
Disease type
Usher Syndrome
Orphan drug recognition
Yes
Patient type
Adult
Children
Inclusion / Exclusion
Funding
Industry
Members involved
Main investigators
Pr Camiel BOON
Representative
Netherlands
Anterior Segment Rare Eye Diseases (WG4), Genetic Diagnostics (TWG6), National Integration (TWG9), Pediatric Ophthalmology Rare Diseases (WG3), Registries & Epidemiology (TWG7), Research (TWG8), Retinal Rare Eye Diseases (WG1)
Working Group Leader
ERN EYE member investigating site
HCP : Principal investigators
Amsterdam University Medical Center / Leiden University Medical Center
Adress
Albinusdreef 2
2333 ZA Leiden
Netherlands