Project management team

Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE

Dr Isabella Vacchi
Project Manager of ERN-EYE
HUS, FRANCE

Guillaume Parent
Project Manager of ERN-EYE
HUS, FRANCE

Dr Amélie Gavard
Medical Writer
HUS, FRANCE

Bernard Coupez
Administrative and Financial Project Manager
HUS, FRANCE

Nicole Beck
SeeMyLife Clinical Research Associate
HUS, FRANCE

Matthieu Stoll
Data analyst
HUS, France

Louise Didier
Administrative assistant
HUS, FRANCE
Communication team

Caroline Wernert-Iberg
Communication officer of ERN-EYE
HUS, FRANCE

Frédéric Kucia
Graphic designer
HUS, FRANCE
CPMS helpdesk

Francesco Rotolo
IT-Specialist
Help ERN-EYE members for technical problems or questions about the CPMS
HUS, FRANCE

Dr Monika Grudzinska Pechhacker
ERN-EYE MD fellow
Help ERN-EYE members for medical questions about the CPMS
HUS, FRANCE
registry

Liesl Staessen
RETgistry project manager
Ghent University Hospital
Chairs of WG1: Retinal Rare Eye Diseases

Pr Bart Leroy
Ghent University Hospital, Belgium

Pr Michael Larsen
Rigshospitalet Glostrup- DENMARK
Chairs of WG2: Neuro-Ophthalmology Rare Diseases

Dr Steffen Hamann
Copenhagen, DK

Dr Catherine Vignal-Clermont
Fondation Adolphe de Rothschild, Paris, France
Chairs of WG3: Pediatric Ophthalmology Rare Diseases

Pr Dominique Brémond-Gignac
Hôpital Necker-Paris, France

PhD Susana Noval
Hospital Universitario La Paz
Chairs of WG4: Anterior Segment Rare Eye Diseases

Prof. Daniel Böhringer
University Medical Center, Freiburg - GERMANY

Pr Petra Liskova
Center of Clinical Ophthalmic Genetics, Department of Ophthalmology, General University Hospital in Prague, Czech Republic
Chairs of TWG5: Low Vision, Daily Life and Patients Groups

Pr Agnese Suppiej
Center for Retinitis Pigmentosa of the Veneto Region - Camposampiero Hospital
(Azienda ULSS 6 Euganea, Padova, Italy)

Pr David Keegan
ERN-EYE Ireland Consortium (EEIC)
Chairs of TWG6: Genetic Diagnostics

Dr Susanne Kohl
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany

Pr Elfride De Baere
Ghent University Hospital, Belgium
Chairs of TWG7: Registries & Epidemiology

Christina Fasser
Supporting Partner
Chairs of TWG8: Research

Pr Camiel Boon
LUMC/AMC - THE NETHERLANDS

Pr Katarina Stingl
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany
Chairs of TWG9: National Integration

Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE
Chairs of TWG10: CPMS & Digital Medecine

Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE