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Publications

The Lancet Regional Health – Europe: ERNs’ actions to support rare diseases patients in context of the war in Ukraine 

August 2022

Following the actions launched by the ERNs during the Ukrainian crisis, a short paper was published in The Lancet Regional Health - Europe.
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Events

DARE Fest 2022 on Refsum Disease

August 2022

DARE Fest 2022 was held online from 11 to 19th June 2022. The aim of this week was to raise awareness on Refsum Disease.
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Events

Black Pearl Awards – Nominations

August 2022

Nominations for the next Eurordis Black Pearl Awards are currently open, until 4th September.
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ERNs, Events

ERICA 2nd General Assembly

July 2022

The ERICA 2nd General Assembly took place in Bologna from 20 to 22 June as a hybrid meeting.
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Events

ESHG Meeting 2022

July 2022

ERN-EYE was present with a booth at the ESHG 2022 in Vienna, Austria.
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ERNs

ERICA WP3

July 2022

ERN-EYE is collaborating with all ERNs for the ERICA project.
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ERNs, Publications

Unlocking the potential for rare disease therapies through wider collaborations between European Reference Networks and industry

July 2022

Prominent MEPs seeking quicker wins for rare disease patients are backing closer collaboration between ERNs and pharma companies through a novel multistakeholder initiative.
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ERNs

Launch of the European Health Data Space (EHDS)

May 2022

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Events

ARVO Foundation Announces Recipient of 2022 Ludwig Von Sallmann Clinician-Scientist Award

May 2022

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ERNs

ERICA Collaborative inter-ERN Research Wall

April 2022

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