0016_ERN_ERN_FLYER2024FINAL_ESV5
0016_ERN_ERN_FLYER2024FINAL_ESV5
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ERNs care for Ukraine
The 24 European Reference Networks (ERNs) for rare and complex diseases are united to support all Ukrainian patients. ERNs are specialized in the diagnosis and treatment of rare/ very rare illnesses in almost all fields of medecine including rare cancer. The ERN 1600 experts centres are embedded in more than…
erncare4UA
BBS guideline
BBS guideline
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Clinical Consensus Statement on Bardet-Biedl
This significant achievement is the result of a collaborative effort between four European Reference Networks (ERNs): ERN-EYE, Endo-ERN, ERN Ithaca and ERKNet.
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ERN-EYE consensus statements
ERN-EYE consensus statements Please find on this page all the consensus statement published by ERN-EYE.
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EURORDIS – Rare Barometer
The Rare Barometer survey focuses on the impact of living with a rare disease on everyday life.
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EURORDIS Black Pearl Awards
Taking place in February, which also marks the occasion of Rare Disease Day, the annual EURORDIS Black Pearl Awards celebrate the outstanding achievements of people living with a rare disease, along with those who go that extra mile to make a difference to their lives. Don’t miss your chance to…
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Exciting news in our Summer Newsletter!
Read the latest news in our Summer Newsletter! ERN-EYE boothes at 3 congresses in June, replay of the LHON webinar, 1st prize for our poster and successful completion of the 1st e learning course!