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ERICA repository of ERNs Scientific Publications You find below an overview of scientific publications related to the ERNs. Publications were obtained from the PubMed database. All publications where one of the authors has an affiliation link where the ERN is mentioned, are added to the publication overview automatically. Updates are performed…

PROMs Repository – Content The ERICA Patient Reported Outcome Measures (PROMs) Repository is the first attempt to identify and centralize Clinical Assessment Outcomes questionnaires of relevance for rare diseases and constitutes a milestone in the Europe-wide standardization of Patient-Centered Outcome Measures (PCOMs) and PROMs for rare diseases. It has been…

Replay of the ERICA Webinars The ERICA webinars offer expert insights into the latest advancements in rare disease research, innovative methodologies, and collaborative efforts across Europe. By bringing together thought leaders from various disciplines, the webinars explore key topics such as data sharing, ethics, and patient involvement in research. Whether…

ERN-EYE WEBINAR – USHER Syndrome Date and time Friday 29 November, 3.30 pm CET. Programme Registration Biographies Pr Katarina Stingl Katarina Stingl, MD is a professor for Ophthalmology and head of the Center for Rare Eye Diseases and the Clinical Unit for Inherited Retinal Degenerations of the University Tübingen. Katarina…