News
Clinical Consensus Statement on Bardet-Biedl
This significant achievement is the result of a collaborative effort between four European Reference Networks (ERNs): ERN-EYE, Endo-ERN, ERN Ithaca and ERKNet.
Search
2443 results
Page
ERN-EYE consensus statements
ERN-EYE consensus statements Please find on this page all the consensus statement published by ERN-EYE.
News
EURORDIS – Rare Barometer
The Rare Barometer survey focuses on the impact of living with a rare disease on everyday life.
News
EURORDIS Black Pearl Awards
Taking place in February, which also marks the occasion of Rare Disease Day, the annual EURORDIS Black Pearl Awards celebrate the outstanding achievements of people living with a rare disease, along with those who go that extra mile to make a difference to their lives. Don’t miss your chance to…
News
Exciting news in our Summer Newsletter!
Read the latest news in our Summer Newsletter! ERN-EYE boothes at 3 congresses in June, replay of the LHON webinar, 1st prize for our poster and successful completion of the 1st e learning course!
68d9c1eb-5e00-1105-467e-175d23071107
Newsletter ERN-EYE | July 2024
Vittoria Murro
WG4
WG4
TWG7
TWG7