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News

IRDIC State of play

The IRDIC State of Play, covering developments in the field of Rare Diseases research from 2019 to 2021, is now available. The IRDiRC‘s annual State of Play report aims to inform stakeholders at large of developments in the field of rare diseases research in order to support decisions of policy makers and research funders. At the same…

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Next ERN-EYE hybrid Workshop in Ghent, Belgium and online

The next ERN-EYE workshop will be held in the beautiful city of Ghent, Belgium, and online from the 1st to 2nd December 2022.
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Research Mobility Fellowships funding

The last round for the Research Mobility Fellowships funding opportunity will open on October, 3rd, 2022.
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Special Recognition Award for Pr Hélène Dollfus 

Pr Hélène Dollfus, ERN-EYE coordinator, received the Special Recognition Award in appreciation of her tireless comittment to retina and rare disease patients.
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The Lancet Regional Health – Europe: ERNs’ actions to support rare diseases patients in context of the war in Ukraine 

Following the actions launched by the ERNs during the Ukrainian crisis, a short paper was published in The Lancet Regional Health - Europe.
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DARE Fest 2022 on Refsum Disease

DARE Fest 2022 was held online from 11 to 19th June 2022. The aim of this week was to raise awareness on Refsum Disease.
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Black Pearl Awards – Nominations

Nominations for the next Eurordis Black Pearl Awards are currently open, until 4th September.
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ERICA 2nd General Assembly

The ERICA 2nd General Assembly took place in Bologna from 20 to 22 June as a hybrid meeting.
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ESHG Meeting 2022

ERN-EYE was present with a booth at the ESHG 2022 in Vienna, Austria.
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