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2085 results

0022_ERN_GOODPRACTICE_2024_GRAPHISME_ES_V2

0022_ERN_GOODPRACTICE_2024_GRAPHISME_ES_V2

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0022_ERN_GOODPRACTICE_2024_GRAPHISME_DKV1

0022_ERN_GOODPRACTICE_2024_GRAPHISME_DKV1

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EURORDIS & ERNs Webinar on “How to Deliver a Diagnosis”

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Innovative Health Initiative – Next call

For the next IHI call, a call for creativity is launched. Identify untapped opportunities to turn them into proposals for IHI projects.
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ERNs Scientific Publications

ERICA repository of ERNs Scientific Publications You find below an overview of scientific publications related to the ERNs. Publications were obtained from the PubMed database. All publications where one of the authors has an affiliation link where the ERN is mentioned, are added to the publication overview automatically. Updates are performed…

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ERICA – PROMs Repository

PROMs Repository – Content The ERICA Patient Reported Outcome Measures (PROMs) Repository is the first attempt to identify and centralize Clinical Assessment Outcomes questionnaires of relevance for rare diseases and constitutes a milestone in the Europe-wide standardization of Patient-Centered Outcome Measures (PCOMs) and PROMs for rare diseases. It has been…

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