Search
2505 results
Picto WG5
picto WG4
picto WG3
picto WG2
picto WG6
picto WG1
Page
ERN-EYE ePAG patient advocates
What is an ePAG advocate? In 2016, EURORDIS1 and the European rare disease community established 24 European Patient Advocacy Groups (ePAGs) aligned to the clinical scope of each ERN. Today, there are over 280 ePAG patient advocates to represent the wider patient community in the development of ERNs. What is the role…