Documentation
EJP RD Funded Project Dashboard
To mark Rare Disease Day, The European Joint Programme on Rare Diseases (EJP RD) is launching the EJP RD Funded Project Dashboard.
Documentation
Press release – Usher Syndrome Guidance for healthcare providers
September 2023
Video about Do’s and Don’ts!
Documentation
New video from Rare Diseases International: what is a rare disease?
March 2023
Documentation
EJP-RD‘s new video explaining the Rare Diseases National Mirror Groups
February 2023
Documentation
New ERN Flyer
October 2022
Documentation, ERN-EYE
Euronews report on ERN-EYE
August 2022
In health, information sharing is crucial. From this point of view, the European Health Data Space, officially launched in May 2022, will play a central role.