All 24 ERNs launch a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients with rare diseases: diagnosis, treatment, advice.
Our HCP centers, particularly those located in the countries currently receiving large numbers of refugees (Poland, Slovakia, Hungary, Romania) are ready to help Ukranian patients with rare / very rare diseases, for specific diagnostic procedures and treatment. Those centers work in close cooperation with the ERNs they belong to.
WE ARE HERE TO HELP!
#ERNcare4Ua