The full report on the European results of the latest Rare Barometer survey launched by EURORDIS is now available.
Gathering the views of 10,478 people living with a rare disease and their family members worldwide, 9,591 of whom are living in Europe, this survey looked at the mental health of people living with a rare or undiagnosed condition and their family members.
The findings underline the urgent need to better integrate mental health into rare disease care and policy, and to recognise this community as a vulnerable population in mental health strategies.
