Project management team
Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE
Dr Isabella Vacchi
Project Manager of ERN-EYE
HUS, FRANCE
Dr Amélie Gavard
Medical Writer
HUS, FRANCE
Nicole Beck
SeeMyLife Clinical Research Associate
HUS, FRANCE
Matthieu Stoll
Data analyst
HUS, France
Communication team
Caroline Wernert-Iberg
Communication officer of ERN-EYE
HUS, FRANCE
Frédéric Kucia
Graphic designer
HUS, FRANCE
CPMS helpdesk
Francesco Rotolo
IT-Specialist
Help ERN-EYE members for technical problems or questions about the CPMS
HUS, FRANCE
Dr Monika Grudzinska Pechhacker
ERN-EYE MD fellow
Help ERN-EYE members for medical questions about the CPMS
HUS, FRANCE
registry
Liesl Staessen
RETgistry project manager
Ghent University Hospital
Chairs of WG1: Retinal Rare Eye Diseases
Pr Bart Leroy
Ghent University Hospital, Belgium
Pr Michael Larsen
Rigshospitalet Glostrup- DENMARK
Chairs of WG2: Neuro-Ophthalmology Rare Diseases
Dr Steffen Hamann
Copenhagen, DK
Dr Catherine Vignal-Clermont
Fondation Adolphe de Rothschild, Paris, France
Chairs of WG3: Pediatric Ophthalmology Rare Diseases
Pr Dominique Brémond-Gignac
Hôpital Necker-Paris, France
PhD Susana Noval
Hospital Universitario La Paz
Chairs of WG4: Anterior Segment Rare Eye Diseases
Prof. Daniel Böhringer
University Medical Center, Freiburg - GERMANY
Pr Petra Liskova
Center of Clinical Ophthalmic Genetics, Department of Ophthalmology, General University Hospital in Prague, Czech Republic
Chairs of TWG5: Low Vision, Daily Life and Patients Groups
Pr Agnese Suppiej
Center for Retinitis Pigmentosa of the Veneto Region - Camposampiero Hospital
(Azienda ULSS 6 Euganea, Padova, Italy)
Pr David Keegan
ERN-EYE Ireland Consortium (EEIC)
Chairs of TWG6: Genetic Diagnostics
Dr Susanne Kohl
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany
Pr Elfride De Baere
Ghent University Hospital, Belgium
Chairs of TWG7: Registries & Epidemiology
Christina Fasser
Supporting Partner
Chairs of TWG8: Research
Pr Camiel Boon
LUMC/AMC - THE NETHERLANDS
Pr Katarina Stingl
Centre for Ophthalmology, University Eye Hospital, Tübingen, Germany
Chairs of TWG9: National Integration
Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE
Chairs of TWG10: CPMS & Digital Medecine
Pr Hélène Dollfus
Coordinator of ERN-EYE
HUS, FRANCE