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EU rare disease conference in Warsaw

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A two-day conference under the Polish EU Council Presidency was held at the Medical University of Warsaw on 10 and 11 April 2025. Pr Hélène Dollfus, ERN-EYE coordinator, attended.

While the opening day emphasised the pressing need for strategic planning and better integration of the European Reference Networks (ERNs) across EU member states as well as Ukraine and Norway, the second day shifted towards practical solutions that can immediately benefit patient care. Under the banner “Bridging Research and Care for Patients,” discussions delved into targeted newborn screening programs, advanced clinical trials, and innovative translational research platforms.

The conference concluded with a strong appeal for more integrated research, faster diagnostics, and closer cooperation between national and European policymakers.