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ERN-EYE, a European Reference Network dedicated to Rare Eye Diseases 

Rare Eye Diseases (RED)

⇒ The leading cause of visual impairment and blindness for children and young adults in Europe

⇒ More than 900 REDs 

⇒ From the most prevalent diseases such as retinitis pigmentosa (estimated prevalence of 1 in 5 000) to some very rare entities described only once or twice in medical literature

ERN-EYE member simple map

ERN-EYE, 29 members in 13 countries across European Union

 to guarantee the best coverage of more than 900 Rare Eye Diseases

  • Coordinator: Pr Hélène Dollfus, Hôpitaux Universitaires de Strasbourg, France
  • All members were approved by their national authority and positevely assessed by a independant body


All HCPs members

4 clinical thematic working groups

ERN EYE addresses these conditions in four thematic groups:

  • Retinal rare eye diseases
  • Neuro-ophthalmology rare diseases
  • Paediatric ophthalmology rare diseases
  • Anterior segment rare eye diseases

6 transversal working groups

These groups are addressing issues common to the four main themes. Additional working groups focus on specific areas, including

  • Low vision, daily life and patient group
  • Genetic diagnostics
  • Registries & epidemiology
  • Research
  • Education,training & guidelines
  • Communication, management & quality




Download the ERN-EYE brochure in your language 

République Tchèquečeština  cs

Danemarkdansk  da

GermanyDeutsch de

Estonieeesti  et

EnglishEnglish en

françaisfrançais fr

Italien italiano it

Lettonlatviešu  lv

Lithuanianlietuvių lt

Pays-BasNederlands  nl

Polskipolski pl

Portugueseportuguês pt

Slovénie slovenčina sl


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This ERN is supported by: