Foundation For Rare Diseases, ERN Ithaca, ERN Genturis and EURORDIS are relaunching the MOOC on diagnosing rare diseases.
Entitled ‘Diagnosing rare diseases: from the clinic to research and back’, this course offers an exploration of the key issues concerning diagnostic research into rare diseases and current problems, as well as an overview of patient experience.
This course is aimed at anyone with an interest in health data and rare disease research, such as undergraduates, PhD students, healthcare professionals, researchers and enthusiasts wishing to understand the ethics and regulatory frameworks in this area.