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International Scientific and Patient Symposium on Usher Syndrome USH2025

The International Scientific and Patient Symposium USH2025 organised by the Dutch Stichting Usher Syndroom, will take place on June 19-21, 2025 in Nijmegen, NL.

Dominique Sturz, ePAG chair, and her association Usher Initiative Austria, has collaborated closely on the program.

Knowledge sharing, cross-pollination and meetings are important goals of the scientific conference on Thursday and Friday 19 and 20 June. At USH2025 Congrestival (Saturday 21 June), compelling contributions and stories from the first two days will be shared with people with Usher Syndrome, partners, parents and other interested parties (USH community).

Scientific conference

The main program of the USH2025 scientific conference consists of five blocks; three blocks will take place on Thursday June 19th, and two blocks will take place on Friday June 20st.  All program contributions will be given in the plenary hall. In addition, there is a separate room for poster presentations.

A. Genetics & diagnostics of Usher Syndrome (speakers to be announced)

B. Modeling Usher Syndrome in vitro and in vivo (Speaker: Vasiliki Kalatzis)

C. Molecular mechanisms of Usher Syndrome pathogenesis (Speakers: Marcos Sotomayor & Jennifer Phillips)

D. Therapeutic strategies for Usher Syndrome (Speakers: Bence Gyorgy & Maryna Ivanchenko) Ivanchenko)

E. Clinical Developments: beyond state of the art phenotyping, biomarkers & clinical endpoints (speakers to be announced)

Saturday, June 21st of 2025, is a day for the USH community. A day to meet, to connect and to share knowledge

Congrestival – Festival of the Senses

Saturday, June 21st of 2025, is a day for the USH community. A day to meet, to connect and to share knowledge.

USH2025 Congrestival will open with a plenary program sharing the most inspiring contributions and lectures from the scientific symposium. Scientists and experts by experience will present the latest insights and developments from worldwide research

There is also the unique opportunity to engage in 1-on-1 conversations with the experts during Meet the Scientist.

Infos

Nijmegen, The Netherlands

From June 19, 2025 to June 21, 2025

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