The EURORDIS 6th Mental Health & Wellbeing Webinar, “How to Deliver a Diagnosis”, will take place on October 23, 2024, from 1:30 pm to 3:30 pm CET (Paris time).
This webinar will explore the critical milestone of delivering a rare disease diagnosis for families and individuals affected by rare conditions. A timely and empathetic diagnosis can empower families, while poor communication can lead to significant emotional distress and mistrust in the healthcare system. Experts from European Reference Networks, including ERN CRANIO, ERN-EYE, and VASCERN, will share real cases and best practices, followed by a panel discussion. Don’t miss this opportunity to learn from leading specialists about best practices in delivering a rare disease diagnosis.
Catherine Vignal-Clermont and Caroline Wernert-Iberg will be the ERN-EYE speakers.
